My name is Pinki Chakraborty, and I am a mother of two boys — Subhajit (12 years) and Sudarshan (9 months).
Both of my children have been diagnosed with Lesch–Nyhan Syndrome (LNS), a rare and severe neurological and metabolic disorder.
Subhajit is completely dependent on caregivers and lives with constant pain, severe muscle stiffness, and uncontrolled movements. 💔
Our younger son, Sudarshan, has now begun showing the same symptoms, and doctors have warned that his condition will worsen without immediate and continuous treatment.
My husband works as a Zomato delivery partner, and I am a full-time caregiver. We have exhausted all our savings and taken loans we cannot repay. Both children require regular blood tests, neurological monitoring, physiotherapy, and long-term supportive care, which we are unable to afford on our own.
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